Copyright © 2011 Jet Kaiser Films. All rights reserved.
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Sally has been diagnosed with ALS or amyotrophic lateral sclerosis, commonly known as Lou
Gehrig’s disease. It is a progressive neurodegenerative disease that affects the nerve cells in
the brain and spinal cord. The disease slowly strips it’s victims of their ability to control their
muscles, sometimes eventually rendering them totally paralyzed. Sally is optimistic, though;
hoping for a cure for the disease, but comfortable waiting, because she has Tom.
Wish Upon A Wedding selected Jet Kaiser Films to help tell Sally + Tom's story.
Jaxtons' Story
I was asked to document Jaxton’s powerful, 2 week
duration on this earth, beginning on February 23rd,
2011. Baby Jaxton had Trisomy 18, a genetic
chromosome disorder in which a person has a third copy
of genetic material from chromosome 18, instead of the
usual two copies.
It’s amazing how much I was personally affected by
Jaxton’s story. I was there in the delivery room during the
eerie silence that followed Jaxton’s long-awaited birth. I
was nearby as Lisa and Josh were forced to make
decisions that no one should every have to face
regarding the life of their baby boy. The emotional
contagion was overwhelming throughout this production.
There were times when I couldn’t keep my camera in
focus due to the tears that were blurring my vision. The
Husmann’s made me feel like family for those 2 weeks. I
have so much respect and love for that family and I have
shared memories with them that will never be forgotten.
Jaxton’s mom, Lisa, started a family blog long before Jaxton was diagnosed which became overloaded with people from all over the world checking in to
recieve the lastest news on Jaxton’s condition. His short life affected so many people and in the words of Jaxton’s mommy, “I can celebrate fully Jaxton’s
impact on this world and how incredibly special he was. His life had meaning and value far beyond my comprehension.”
Read Jaxton’s full story on Lisa’s blog When I count My Blessings